My wife is pictured receiving an injection from a nurse at the hospital. (article below)
Liz suffers from Multiple Myeloma and is currently in remission. She has undergone numerous chemo treatments and three stem cell transplants.
Access to emergency room services are critical for Liz. There are numerous times in her treatment that she is left without platelets. Platelets are cells that circulate in the blood and clot to keep us from bleeding. When Liz is void of platelets, a simple nose bleed may cause her to bleed out and take her life. If Liz spikes a fever of 100.5, her body is telling her there is a problem and she should rush to the emergency room. Access to an emergency room is critical for Liz's survival. We live 1.5 miles from a hospital, however, during rush hour traffic in the Thanksgiving Point area, it may take up to 35 to 45 minutes for us to reach the hospital due to traffic backups, just enough time for Liz to potentially bleed to death.
The LDS Church has decided to build a 123,000 square foot office building within a few hundred feet of our home. Their plan is to house 550 employees and also have between 500 -1500 people come and visit their Family Search and Discovery Center. This project due to the increase in traffic in our neighborhood could result in the death of my wife.
The city of Lehi approved a building application for the LDS Church that includes this massive office building, a Family Search and Discovery Center housed in the office building and a LDS Stake Center. The planning commissioners indicated that the health, safety and welfare of the citizens of Lehi would not be impacted by this development project (obviously not taking into account the increase in traffic).
I have put the city and the Church on notice that if one car kills or injures anyone in the Thanksgiving Point community that they will be held liable for the injury or death of that individual (more than likely a child who was playing in their front yard and runs out into the street at the wrong time, it happens).
Corporations don't build massive office complexes in residential neighborhoods and increase traffic by 10's of thousands of cars driving down residential (25mph) streets.
I have filed an appeal of the approval by the Lehi Planning Commission for the Commercial Office building proposed by the LDS Church.
The city has allowed the LDS Church to violate numerous (dozens) of development codes and I will show in my appeal where the city has allowed this to happen.
If I lose my appeal, I will file a lawsuit in Utah County 4th District Court and if I lose there I will file an appeal with the 10th Circuit court in Denver.
My wife's life is at stake and I don't want her life cut short because of traffic from a commercial office building that never should have been allowed to be built in a residential neighborhood and certainly not on a PGA caliber driving range, who does this? It is just plain wrong. It is clear by virtue of the LDS Church building this massive office building that they don't care about the health, safety and welfare of the families who live in the area, they must not care about families at all, they just say they do!
Here is the article
Myeloma patients in Utah take curing cancer in their own hands
Researchers haven’t cured myeloma yet, so local patients are taking the task of finding a cure into their own hands.
Myeloma is a plasma cell cancer that begins in the bone marrow. Most people who are diagnosed with myeloma are over the age of 50, men are more likely to be diagnosed than women and blacks have almost twice the chance of acquiring myeloma, according to the Leukemia and Lymphoma Society.
“The goal is to have patients involved in accelerating their own cure,” said Jenny Ahlstrom, the founder of Myeloma Crowd, a website providing information, support and resources that is part of the Lehi-based Crowdcare Foundation. “Most of the time you sit back and a doctor says you can have this treatment or this treatment.”
At 48, Lehi mom Lizzy Smith isn’t the typical myeloma patient.
“When I was first diagnosed diagnosed, I didn’t even know what myeloma was,” she said.
After being diagnosed in 2012, she moved from San Diego to Utah to receive treatment. Until she met Ahlstrom on Twitter and got involved in Myeloma Crowd, she thought she was the only female in Utah around her age that had myeloma.
“It’s really overwhelming when you’re not feeling well and you don’t understand your disease,” Smiths aid. “It’s like drinking from a water hose, but it’s so important to know something about your disease.”
Because everyone’s myeloma is different, they said patients should educate themselves on their type of myeloma and have a plan for when they relapse, something that almost every myeloma patient will experience.
“A lot of people just put their head in the sand and say, 'I don’t want to know, I’ll figure out when it happens,'” Ahlstrom said.
Smith relapsed about a year ago, but is in remission again. Ahlstrom, who was diagnosed in 2010, has yet to relapse.
For patients that want to get involved in medical trials, it’s often difficult to get understand the medical jargon explaining the the research, so Ahlstrom sits down with the researchers and has them explain the trials in patient-friendly language. The explanations are then posted on myelomacrowd.org. As part of its research initiative, the group also crowdfunded $187,000 to fund two medical trials for immunotherapy treatments, something that’s not usually likely to receive funding.
“We are sharing information, we are funding research, we are really moving the bar for our disease,” Ahlstrom said.
For those recently diagnosed with myeloma, they recommend seeking out a specialist and for the patient to educate themselves about the type of myeloma they have, since patients typically have multiple types of myeloma cells in their blood.
This Saturday, Myeloma Crowd will host a roundtable from 9 a.m. to 4:30 p.m. at the DoubleTree Suites, located at 110 W. 600 S. in Salt Lake City, to educate patients and caretakers on myeloma and treatment options. Time will be dedicated for a questions.
Registration begins at 8 a.m. and costs $25.
If you would like to donate please cut and paste the link below or just click on the word donate.
Donate
If you would like to donate please cut and paste the link below or just click on the word donate.
Donate
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give.crowdcare.org
Welcome
to my fundraising page! Today, multiple myeloma is treatable, but not
curable. Still, too many people are dying from this disease. A cure is
close. And if not a cure, a treatment that keeps this disease in check
permanently. Please help me
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